Yesterday morning I became ill. Sammy had developed the illness and decided to share it.
I worked through the illness, taking the boys to get groceries and retreiving Bruno from a friends house. By the afternoon, my head and throat hurt and my body was aching. I announced that I was going to lay down for a while.
As I laid there with my eyes closed, trying to visualize that I was well and active, I braced myself for at least one of my children to barge into my room either with a question or a request. No one came in, in fact the whole house was quiet. I soon fell asleep.
Forty five minutes past when I was awoken by Bruno lovingly talking to Sammy. Sammy had made a mess of himself and Bruno was explaining why he needed a bath. Normally I would have gotten up to take over the situation, but instead I laid there listening to my son take care of his little brother with compassion and strong guidance.
Bruno and Sammy have had a bond even before Sammy was born. Bruno, age ten, would put his hands on my belly and he would say "Hello Sammy! Its your brother Bruno!" Instantly Sammy would start kicking and rolling, as if he was trying to get out to be with Bruno. This interaction continued when Sammy came out into the world as a critically ill baby. I can't imagine how Bruno felt walking up to his baby brother's bed seeing him unconscious with tubes and wires covering his whole body. Bruno would quietly touch Sammy's hand or the top of his head and he would whisper hello. I would watch the nurse brace herself because Sammy's respirations would speed up which would trigger an alarm because he would breath past his ventilator and his blood pressure would spike suddenly. Bruno would be scared at first until one day I told him that was the only way Sammy could tell him hello back.
Bruno took Sammy's illnesses hard and it was always so difficult to see all my boys in so much pain, in their own ways.
When Bruno was in the fourth grade, his class was going to go on a four day camping trip. Sammy was due for a diagnostic heart cath so I scheduled it for when Bruno was gone, thinking we would be back home before Bruno was. I didn't tell Bruno about it, instead the days leading to the camping trip, I focused on the trip. It was all about Bruno and for the first time in a long time, he was happy and excited.
The heart cath went terribly wrong and Sammy was still in the hospital when Bruno arrived back home. As I saw the fear and sadness engulf Bruno once again, I tried to be thankful for those precious days at camp when he was allowed to be a kid.
One day when Sammy and I were staying at the hospital, my ex-husband called me telling me I had to come home because there was something wrong with Bruno. I came home for the evening, planning to return to the hospital the next morning. Bruno was sullen and quiet as I drove him to his football practice. As I parked the car, we both just sat there.
"It's not fair Mom. I can do anything I want and Sammy can't! He will never play sports! He may die!" Bruno blurted out as tears rolled down his face. The pain in the car was unbearable and I couldn't speak for fear of breaking down myself. I took a deep breath and told him that Sammy would never want Bruno to stop doing something he loved just because he couldn't. I said soon, Sammy would be in the bleachers cheering Bruno on and he would be so proud to say Bruno was his big brother. This eased the pain a little so I threw a joke in. I told him Sammy may not even care that he couldn't play sports. Not every boy wants to play sports. I reminded him of his Uncle Sam, my brother. Uncle Sam hated sports. I said "Hell, Uncle Sam can't walk and chew gum at the same time!" This made Bruno chuckle and reach for the door handle.
"Go out there and play for yourself and know Sammy is proud to have you. I love you so much!" I said as I patted him on the shoulder. The coach was standing outside the car and he wrapped his arm around Bruno as they walked away from me. As I stood there watching the coach and Bruno walk away from me I was so thankful for the coach to take over because I had nothing left in me.
Wrestling season came shortly after football and I missed most of Bruno's season due to spending most of the time with Sammy in the hospital.
One weekend, my sister Lorrie and my mom came to the hospital so I could go watch Bruno wrestle in a tournament. I didn't tell him I was going, I just showed up at the last minute. It was a tough match to watch at first because the other kid had the upper hand and Bruno was taking a beating. I sat in the bleachers holding my breath when I realized everyone had surrounded the mat and all you could hear was people chanting Bruno's name. All the coaches were excitedly screaming at Bruno, instructing him what to do. I had to smile at two of the coaches as they put each other in the moves that they wanted Bruno to do. Finally Bruno got the upper hand and pinned his opponent. The gym went crazy with cheers and excitement. Before I knew it, Bruno had ran up into the bleachers to give me his ribbon and a kiss as he always did after he won.
He froze when he reached me to find I was crying. He quietly asked if Sammy was ok. I told him yes. Bruno asked why I was crying.
"I'm sorry I'm crying...its good tears. I'm so overwhelmed at watching how strong you are and how you didn't quit and just give in. I'm so proud of you Bruno for so many different ways!" I said as I stood up and joined in the cheering of my boy.
I don't know why I was so blessed to be the mom of such extraordinary children but I thank God everyday.
My blog focuses on my life as a mom with a child with a rare chromosome deletion and many birth defects including congenital heart defects. I write of how I have overcome many obstacles in my life so I may life the life I was meant to live. I am a Reiki II healer and numerologist.
Wednesday, June 27, 2012
Brotherly Love
Thursday, June 21, 2012
Seeking A Life Coach...What Do You Have To Lose?
My former life coach turned good friend were talking yesterday about how so many people could benefit from coaching, but for their own reasons don't.
He said I was maybe unique in the fact that I pursued him and allowed him to help me. I didn't tell him this, but I disagreed with him to so some degree. I needed him. My person (angel, spirit guide, inner self...what ever name you put to that inner voice in you that helps guide you) was screaming at me that I was dangerously close to losing myself and I desperately needed help. I had no choice but to let my coach be my tool to find myself. It made me think of an excerpt of my book.
"Once again, I wrote down my answers wondering why my coach had me do this homework. It didn't matter what I wanted out of life. What mattered was getting the help Sammy needed and trying to keep a roof over the boys' head.
It hurts to think how lost I was just a few months ago. I had completely given up on myself as a human being. I was on the Earth to serve purposes, but I lacked the ability to see that my life had purpose."
This saddened me because I think a lot of people just go through life barely living...barely content and fulfilled. We both questioned how to bring people to their awareness without any good ideas.
How do you convince someone to jump out of their comfort zone and find themselves?
I laughed at myself today as I went through my day trying to figure out a solution when it dawned on me to make an intention that people could start listening to their person telling them that they are so much more than the labels they put over their head. They learn love and peace and they become their own lights of love shining on everyone they meet.
Everyone can learn and share their love...all they have to do is do it. Quiet your mind and listen to your person and let that lead you to happiness.
Wednesday, June 20, 2012
Counting My Blessings
My guy Andrew (I think I'm way to old to call him my boyfriend ;) ) came over for a bonfire tonight. Mario was so elated to have him come over because they are so much alike and Andrew understands him like no other. Sammy was so happy to see Andrew..they all love him so very much.
Sammy discovered fire by marshmallow. I was sitting by Andrew as we watched Sammy catch his marshmallow on fire and then try to blow the flames out. I must admit, I wanted to grab the stick from him for fear of him burning himself but I sat back and let Andrew guide him and let him be a typical six year old boy.
Andrew always has that knack where he allows Sammy to be a little boy and he's protective enough to do it safely.
It became late and everyone was getting tired. Andrew suddenly announced that he was going home and I was content to let him go so I could get the boys to bed.
We have an unique relationship where he breezes in and becomes the best "Step Dad" and then he goes home so I can tend to the boys.
Maybe its bizarre that we don't plan to join our households together any time soon, but it works for us and it brings us happiness.
All day, I have thought of a time when Sammy was in the hospital with septic shock, anemia and heart failure. Andrew showed up at the hospital without me asking. The woman from the transport department wheeled a wheelchair into Sammy's room to take us to a test. I've done this more times than I care to admit...I sit in the wheelchair and hold Sammy on my lap while some stranger pushed us to a testing area. This time was different in the fact where she called Andrew "Dad" and asked him if he wanted to push our wheelchair. As Andrew pushed us down the hall, I felt a great sense of protection and love. He even made us all laugh when he pushed us into the elevator with us facing the back of the elevator. The woman made a comment and Andrew quickly turned us around so we didn't look goofy with our backs faced against everyone who entered.
So maybe I don't have the traditional life, but I'm so grateful for the one I have and I'm very grateful to have Andrew as the "Step Dad from hell" as Mario jokingly but lovingly calls him.
Reiki Share
Last night, I attended my first Reiki Share. I almost didn't go because I was in a bad mental state. I allowed my son Sammy to go with his father over the weekend and he came home with an ear infection because his father let him swim in a lake at his girlfriend's house. Sammy has malformed ear canals that has caused chronic ear infections and surgeries. I specifically told my exhusband to keep him out of water. I was angry at my exhusband for not caring enough to be a protective parent and then the old anger came through of how he just uses Sammy to get attention. "Look at me! I got a sick kid!"
The car ride to my Reiki Share meeting consisted of me trying to let go of the anger and the need to choke my exhusband so he could feel as bad as Sammy did with his ear oozing puss. My head and neck were pounding with tension.
As soon as I walked into the dim lite room full of incense and new age music, my anger subsided.
We talked and shared and I quickly felt light and free. I truly have great love for this wonderful group of people who have shown me so much in such a little amount of time.
In one exercise, we were instructed to close our eyes and put our hands in the prayer position. We were to slowly cup our hands so it looked like we were holding a ball and in that ball was nothing but great love.
As I filled my ball with love, I felt it with every cell in my body. I became nothing but love. As our instructor told us to open our eyes and send it to the person facing us, I was elated to see my person was "R", someone I had grown to love, respect and admire. As we looked at each other and sent each other our love, I found it almost overwhelming, it was so powerful. My body vibrated and I felt so safe and complete.
I left the meeting feeling light in my step. I stopped at a store to buy a vitamin water and I almost told the cashier I had love for her. I silently giggled at myself, but love is so much greater than anger.
I went home and shared with my boys what happened and I could feel the air of my home change because I changed it. I filled my home with love.
My instructor passed out a paper that had a prayer on it and she suggested that we should say it every morning, which I did first thing this morning. I want to share it and suggest you say it too...it is awesome!
Just for today, I will let go of Anger
Just for today, I will let go of Worry
Just for today, I will count My Many Blessings
Just for today, I will do My Work Honestly
Just for today, I will be Kind to Every Living Creature
Just for today, I will Love Myself